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Monday, May 13, 2013

Welcome to Diabetes Blog Week!


I am delighted to be joining the diabetes blog community for the 4th Annual Diabetes Blog Week.  As I recall from last year, posting daily was hard but very rewarding.  I "met" some wonderful bloggers and was able to learn a lot.

The way that Karen from www.bittersweetdiabetes.com has set up the challenge, we have a topic each day (Monday through Saturday) with two alternate topics if we want to substitute.  Today's topic is as follows:

Often our heath care team only sees us for about 15 minutes several times a year, and they might not have the sense of what our lives are really like,  Today, let's pretend our medical team is reading our blogs.  What do you wish they could see about your and/or your loved one's daily life with diabetes?  On the other hand, what do you hope they don't see?

First of all, let me say that I love my husband's endo.  She is very nice and has been great at responding.  I am not sure that I was a huge fan of electronic medical records until Silent Sam was diagnosed with diabetes. Now it is wonderful to have all his doctors connected and on the same page.  The other thing I liked about his endo is that there is a dietitian as part of the practice.  On the first visit, we saw the endo but also had an appointment with the dietitian.  That was a great help.

What I wish the endo could see about our daily life with diabetes is how hard it is to be on the straight and narrow.  That after our initial surge, maintaining the behavior has gotten really hard.  It is almost like being back when we were told that Silent Sam was pre-diabetic.  We worried but with no visible illness it was hard to behave.  I wish that she knew to call us back in and call us on the carpet to get us back on track.  Don't get me wrong, Silent Sam has done very well.  He has been submitting his numbers each week and they have been pretty stable (except for that week of vacation, maybe....).  But I wish there was a mandatory meeting with the doctor to go over everything again.  I don't want to be as scared as I was at first : I just think the urgency was good for us.

Diabetes is hard because it is silent.  I worry that things will go bad before we can fix them and there will be a larger problem.  I wish she could look into our lives and point out - perhaps not too kindly - what we are doing wrong and what we need to change.

So off I go to now explore some of the other diabetes blogs.  I will let you know about what I find.  There are just so many talented people!

Thanks for reading!

We are hiding from diabetes in here